Extraordinary People: The Girls With Too Much Skin

Actually the announcer at the beginning was right- these programmes make you wonder why you ever complain. I was so shocked by the initial image of one of the sisters as a baby. She did look just like an alien, which I feel safe to say, because her dad said it. I've never seen anything like it. I was literally in a state of shock for the first ten minutes of this show, I cried my eyes out. It was so horrific. if you didn't actually see it, I wouldn't know how to explain.
The sisters have a condition (a defective gene again, a meeting of two defective genes) which makes them grow as much skin in a day as a normal person does in two weeks. I had images of the skin kind of hanging off, but actually it just looks really swollen and painful. It affects one person in a million. They have to scrub their skin down twice a day for two hours. It just looks bright red and they just cry. It just looked so unbelievably painful. How can they cope? I just don't understand how people can cope with such awful things. I can't understand how they can have another baby with odds of one in four, and risk it all over again, what amazingly brave people. The girls just seemed so nice and normal. No one deserves that.
The programme also covered another family with the defective 'Harlequin' gene. Again, the picture of the girl as a baby was just utterly shocking. I can't imagine what they must have thought when she was born. I guess now they are older they kind of look like burns victims, but that must be from the constant rubbing of the skin.
Will science eventually cure all these things? I bloody hope so. Anyone who says 'that's the way nature intended things' needs shooting. No one should have to live in pain.